Mother of boy with rare condition to host vigil to “death of care”

April 6, 2016 Spilsby Online 0

A mum of a boy with a rare genetic condition unable to learn how to talk and develop is fearing for the future of services designed to help children like hers. Dominique Pettitt from Spilsby feels she has been let down by the health and social care system as she fights for services to help her son, seven-year-old son Sebastien. He was born with Phelan McDermid Syndrome, a chromosome disorder which affects development. It means […]